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Down syndrome is a chromosome disorder which usually causes delays in physical, intellectual and language development.
The exact causes of the chromosomal rearrangement and primary prevention of Down syndrome are currently unknown.
Down syndrome is one of the leading clinical causes of mental retardation in the world. It is not related to race, nationality, religion or socioeconomic status.
The incidence of Down syndrome in the United States is estimated to be one in every 800 - 1,100 live births.
Of all children born in this country each year, approximately 4,000 will have Down syndrome.
There are approximately one-quarter million families in the United States affected by Down syndrome.
Women under 35 years of age give birth to more than 80 - 85% of children with Down syndrome.
There is wide variation in mental abilities, behavior and physical development in individuals with Down syndrome. Each individual has his/her own unique personality, capabilities and talents.
30-50% of the individuals with Down syndrome have heart defects and 8-12% have gastrointestinal tract abnormalities present at birth. Most of these defects are now correctable by surgery.
Individuals with Down syndrome benefit from loving homes, early intervention, special education, appropriate medical care and positive public attitudes.
In adulthood, many persons with Down syndrome hold jobs, live independently and enjoy recreational opportunities in their communities.
The following agencies and organizations have requested and/or agreed to be listed on this page.
Rhode Island Developmental Disabilities Council - www.riddc.org
Rhode Island Supports & Education for Adults and Children - www.riseac.org
Rhode Island Parent Information Network - www.ripin.org
Paul V. Sherlock Center on Disabilities - www.sherlockcenter.org
Would you like to e-mail a member of the New Parent Committee?
Do you have a suggestion for a General Membership Meeting?
Do you have a sibling with Down syndrome? Want to "sound off" to another Sibling?
The Arc of the United States - www.TheArc.org
National Down Syndrome Society - www.ndss.org
National Down Syndrome Congress - www.ndsccenter.org
CT Down Syndrome Congress - www.ctdownsyndrome.org
Mass. Down Syndrome Congress - www.mdsc.org
Agencies and Organizations: If you are a non-profit or government organization and wish to be listed on this resource page, please e-mail us or send your information to DSSRI, 99 Bald Hill Road, Cranston, RI 02920. Phone: (401) 463-5751. Fax: 463-5337. For TDD use RI Relay 1-800-745-5555.
