Our MissionThe Down Syndrome Society of Rhode Island (DSSRI) is dedicated to promoting the rights, dignity and potential of all individuals with Down syndrome through advocacy, education, public awareness, and support. We offer membership meetings (open to the public), newsletters, a lending library, public awareness activities and conferences, as well as support and personal assistance on educational and medical issues.
Information and support for parentsDSSRI provides information and support on medical and educational issues associated with raising a child with Down syndrome. We share this information with parents, family members, professionals and other individuals through informational meetings with speakers and panels, newsletters, a comprehensive library, conferences and special events. About 500 individuals and organizations receive our newsletters.
DSSRI also provides support on an individual, parent-to-parent basis. DSSRI provides a free New Parent Package, which includes books about Down syndrome, pamphlets, newsletters, and DSSRI membership information. The New Parent Committee provides in-person and telephone support, and hosts social activities where new parents can network with other parents.
We are constantly updating and expanding our lending library, since research and medical information related to Down syndrome continually changes. Our library is the most current and comprehensive on this subject in the state.
Public awareness and advocacy in the communityDSSRI also serves as a resource for professionals interested in parental concerns. We provide speakers to schools, colleges, professional organizations and civic/fraternal groups.
DSSRI also advocates in the service system and in the community for all individuals with mental retardation and developmental disabilities and their families. DSSRI is affiliated with the National Down Syndrome Congress (NDSC) and the National Down Syndrome Society (NDSS).
Board of DirectorsMarilyn Blanche
Siegfried M. Peuschel
MD, MPD, PhD
Honorary Board Member